Cancer expert gets experimental treatment for incurable tumour,phenomenal result

Re:Cancer expert gets experimental treatment for incurable t... by jseliger on Wednesday September 20, 2023 @11:25AM (#37585390)

I don't know about the situation in Australia, but in the US the FDA is way too slow and arbitrary, and it's costing lives every year, including, soon, mine: https://jakeseliger.com/2023/07/22/i-am-dying-of-squamous-ce... (HN discussion: https://news.ycombinator.com/item?id=36827438).

People with what I have—recurrent/metastatic squamous cell carcinomas—are in effect already dead. We should be able to try novel drugs faster, and, if they don't work or have serious side effects, fine, the end result is the same. If they do work, they may prolong everyone else's lives.

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Re:Cancer expert gets experimental treatment for incurable t... by slashdev on Wednesday September 20, 2023 @11:40AM (#37585592)

Have you tried obtaining the drugs by other means?

My mom is taking an experimental drug, not FDA approved, which my dad obtained from India after much research and consulting with her doctor.

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Re:Cancer expert gets experimental treatment for incurable t... by kstrauser on Wednesday September 20, 2023 @11:27AM (#37585416)

Sorry to hear that, and I agree completely.

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Re:Cancer expert gets experimental treatment for incurable t... by mortureb on Wednesday September 20, 2023 @12:25PM (#37586185)

As the other commenter mentioned, I knew someone that had fantastic results just getting her “experimental” drugs from India.

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Re:Cancer expert gets experimental treatment for incurable t... by jassyr on Wednesday September 20, 2023 @12:54PM (#37586606)

Curious, are these easily found and purchased online? Or does one have to go through some "darkweb" channels?

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Re:Cancer expert gets experimental treatment for incurable t... by mortureb on Wednesday September 20, 2023 @01:01PM (#37586692)

They are of Indian origin so they knew doctors directly in India.

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Re:Cancer expert gets experimental treatment for incurable t... by mortureb on Wednesday September 20, 2023 @12:30PM (#37586262)

I’m sorry for what you’re going through. I think there really should be a separate FDA category for people with a few years left to live. Still not available to the general public but something a physician should be able to recommend to terminal cases.

Have you tried directly calling or visiting the trial location and try to get in touch with the person administering these to see if you can get in that way. Alternatively if you’re rich you can commission a lab in India to make these for you. They have a lot of experience making the covid mRNA drugs so should be able to pivot relatively easily if you’re paying enough.

[ Parent | on HN ]