Some people will always say wrong things. I’ve found it helpful to focus on those who are speaking truthfully, and seeing if I can amplify or even help them.
"Coincidentally," she's white.
Celebrities somewhat often advocate for a condition they or a relative have. If it has a genetic component associated with a particular ethnicity, well, you are going to find people of that ethnicity advocating for it.
So it's not outright crazy talk to say the condition gets the amount of funding it gets because it's a Caucasian disorder.
It's unfortunate that it can potentially be spun as some form of racism. I long ago concluded that as someone with a form of CF, my "white privilege" includes a lifetime of suffering that most people will happily discount when hating on white people for historic racism.
We fight over an offence we did not give against those who were not alive to be offended.
-- Kingdom of Heaven
And in Take the Lead the main character says something like "Even if you can find someone to blame, it doesn't fix the problem."
Hating on whites doesn't fix the problem. Maybe someday we can find some other reaction to history and our unhappiness with it and our desire to have a future unlike our often ugly past.
Just the fact that Trikafta works probably will spur efforts to do something similar to sickle cell.
Sickle cell disease, effects 1 in 365, 90,000 suffers. Federal Funding $812. Foundations $102
Cystic Fibrosis, effects 1 in 2500, 30,000 suffers. Federal Funding $2807. Foundations $7690
https://jamanetwork.com/journals/jamanetworkopen/fullarticle...
Historically, male diseases got studied more than female diseases, probably having nothing to do with sexism per se. Most physicians and researchers were male, so they were interested in things relevant to their lives.
But that doesn't stop people from crying "Sexism!" about it.