Chronic fatigue syndrome may have a post-viral infection origin

Re:Chronic fatigue syndrome may have a post-viral infection ... by nso on Monday September 11, 2023 @01:18PM (#37470390)

Ocrevus? How's it treating you?

I've been on Fingolimod Accord (generic Gilenya) for a year, Gilenya for 8-9 years, and before that Rebif for like 13 years? Medicated at 18, ill since 12. Never felt better really. Symptom free and side-effect free.

The Rebif was kicking my ass with its side effect, I attribute my constant intrusive suicidal thoughts during that time to the medicine, but other than a lower-than-normal heart rhythm I am a very happy user of my current medication.

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Re:Chronic fatigue syndrome may have a post-viral infection ... by jassyr on Monday September 11, 2023 @02:52PM (#37471915)

After 3 years of Ocrevus I'm switching to Kesimpta this week. I've had too many infections with Ocrevus and I'm hoping the lower dose with Kesimpta will help. I had laryngitis for a few weeks, Covid for a few weeks, other little things too, and have had to miss work as a result. Otherwise Ocrevus has been amazing for my MS!

I was diagnosed almost 15 years ago and doing fairly well. I skipped the 'CRAB' drugs specifically because of the depression/suicide risk. Being already at risk for those things I thought the negatives far outweighed the positives -- personal choice.

So glad Gilenya is working for you! Some of the new drugs are quite amazing.

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