Re:The human Y chromosome has been completely sequenced
by spookie on Friday August 25, 2023 @04:59AM
(#37259576)
I trust the scientists, the problem isn't them.
Look at the whole abortion data scandal in the U.S.
Re:The human Y chromosome has been completely sequenced
by Earw0rm on Friday August 25, 2023 @06:48AM
(#37260173)
The problem there is the US' insane theocrat-conservatives (or just misogynist assholes hiding behind a thin veneer of religious justification, as the case may be).
I'm not saying a health IT system should have no privacy controls either. But the requirements for such controls need to be balanced against having a system that actually works, and that means having some people who actually understand the tech, and the workings of hospitals, having a role in requirements conversations. Instead it was dominated by MPs, "patient advocacy" groups and privacy campaigners, none of whom know or care anything about how to build a workable system.
(Also our health system's IT is a hellscape, but one reason for that is that people would literally rather not have a working system at all, than one with less than impeccable privacy controls.
Personally I'd gladly sacrifice a fair bit of medical privacy in return for giving scientists greater insight into disease processes, but the average citizen here wants advanced healthcare without giving their data to research scientists. /facepalm )