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Re:WASF3 disrupts mitochondria and may mediate exercise into... by roody15 on Wednesday August 16, 2023 @02:48PM (#37151781)
Throughout my late teens and early 20’s I suffered from chronic fatigue. Tested positive for mononucleosis three times until later finding these were false positives to Epstein Barr.

Later learning my body was having an autoimmune inflammatory response to viral activity causing debilitating fatigue.

Took variety of treatments including steroids, anti depressants, supplements … and so on.

When I was 22 I met person on the campus of mizzou who simply showed me some meditative stretches and breathing exercises. The idea was to just slow down and focus on improving your bodies own health where it’s at.

This is a oversimplification but the key for me was to stop thinking this was a virus or disorder or in general things were happening to me .. in which I was a passive unfortunate recipient looking for professionals to help.

Instead I decided from now on I would just try and be a healthier person in mind body and spirit where I was at that moment.

The change of mindset to where it is my responsibility to improve my own well being has paid massive dividends. As a middle man I have no real health issues, no chronic fatigue or reoccuranr high white blood cell accounts indicating and over reactive immune system.

My case will lot insipidity apply to all but if I could impart any wisdom would be just take things into your own hands and be an active person working on improving your own condition whatever it may be.

Change the mindset of shoots this sucks and no treatments work … why is this happening to me… to what are things I can do to improve my existence. Am I a nice person. Am I healthy (weight / exercise).. do I like my job and find it is meaningful…

Sorry if sounds dumb and corny but made a world of difference for me.

Re:WASF3 disrupts mitochondria and may mediate exercise into... by codeTired on Wednesday August 16, 2023 @03:36PM (#37152488)
The problem is fatigue can be caused by many things. Some things may show up on tests some do not.

It can literally take many years to get somewhere. From my experience doctors are absolutely useless when it comes to complex illnesses.

I have been to Mayo Clinic. I spoke to researchers and I see top physicians at universities. These days I do the leg work. Send them research articles, suggest meds, and tests. My neurologist asked if I have formal medical experience.

I’m planning on building a community for individuals suffering from odd undiagnosed symptoms and building a network of competent physicians.

Re:WASF3 disrupts mitochondria and may mediate exercise into... by hinkley on Wednesday August 16, 2023 @04:08PM (#37152988)
Complications of Epstein Barr have not been ruled out as a cause for CFS. But the problem is that nearly everyone has been exposed so it's hard to find counterexamples (or the lack of counterexamples)