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Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by Lio on Monday February 27, 2023 @07:08AM (#34955477)
It's definitely not too late for you mate, no matter how it feels in the short term.

You're putting it off because deep down your subconscious still knows that you are important and have innate value. When things are dark it's easy to forget it but the world needs you, people you know need you and love you. I suspect it's a trick of the mind that hides that from us temporarily.

Anything you do will help and it will get better. Take each day as it comes and note every small win.

Try, fail, try again, fail again but better.

What you are feeling will slowly pass and fade as unlikely as that may sound.

Like a cut healing, one day you just notice that you can remember good things again. Then you wonder why you ever felt that way and you'll be able to keep an eye out in case it ever happens again.

My own sleep problems are caused by allergies, I think. Nasal inflammation stops me sleeping but I also suspect it plays a direct role in depression.

Little things that have helped me:

  * Regularly vacuuming bedding.
  * Boil washing bedding to kill off any dust mites.
  * Vacuuming the house in general.
  * Getting more exercise, even just going for a walk every day is good.  Being outside also helps boost vitamin D.
  * Cleaning teeth properly including flossing.  That's to help with gum inflammation which helps with inflammation in general.
  * Drinking more water.  I like keeping a bottle of cold water in the fridge.  I read somewhere that dehydration was bad for inflammation.
How much of that is just anecdotally helpful I don't know but it's simple and cheap to do.

Oh and don't forget that you can talk to people confidentially when you need to:

https://www.psychologytoday.com/us/basics/suicide/suicide-pr...

Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by Llamamoe on Monday February 27, 2023 @12:40PM (#34959432)
I'm not a person who went from high functioning to struggling. I'm a person who went from no longer able to attend high school to ten years of being trapped at home by progressively debilitating fatigue.

I've tried hundreds of things over the years, but it's like playing whack-a-mole or trying to slay the mythical hydra. For every improvement I manage, I fail two. No matter what I do, it isn't enough. I can barely take basic care of myself, treatment is unachievable.

I fooled myself into thinking it'd get better when I started PAP, regularly working out. But it just wasn't enough to function. And then extreme post-meal fatigue hit, and everything has gone to shit.

At this point, I'm not even able to try psychologically. I've given up. It's over. Each of my problems has a realistic fix, but none are achievable for me. I can't even do my own groceries or prepare food half of the days.

Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by dsego on Monday February 27, 2023 @01:18PM (#34959961)
Could there be an untreated underlying issue? Seems worth doing a thorough checkup to eliminate Lyme, Wilson's, Sjogren, Lupus, neurological issues like FTD, diabetes, mental illness, eg major depression. Maybe there is something like modafinil that can give you a boost (with a prescription of course).
Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by Llamamoe on Wednesday March 01, 2023 @03:34AM (#34980061)
There definitely is. Partially managed sleep disordered breathing is one, whatever's up with my gut is two, but healthcare where I live sucks. I wait for months just to be treated dismissively and told I need a shrink for daring to think there's something physiologically wrong with me.
Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by jonkho on Monday February 27, 2023 @03:32PM (#34961506)
Have you tried parasite cleanse? I’ve used veterinary dewormers to great effect. I’m also surprised no one has mention doing sinus rinses to clear their breathing problems.
Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by kiko123 on Monday February 27, 2023 @04:25PM (#34962068)
I'm pretty sure you've already looked into this but I couldn't scroll past without dropping in my thoughts; feel free to ignore them. I'm dealing with similar problems as a post-covid sequelae, in my early 20s with debilitating problems and also having to get to the root cause myself as doctors are clueless. Have you had your gut microbiome tested (with zonulin + IgA + parasites, fungi and viruses)? If so, feel free to plug it into cfsremission.com to see if something pops out. Oral microbiome and health? SIBO test? Candida? Immunological check up? ANA? EBV or other latent viruses reactivation? Elimination diet / carnivore? You could also try FMT if all else fails (either expensive at a clinic or DIY at home). Good luck man, you're stronger than most of us.
Re:Poor Sleep Drove Me Insane, and My Long Path to Recovery by Llamamoe on Wednesday March 01, 2023 @03:36AM (#34980082)
I do want one actually, yeah. Much of my decline started after heavy antibiotics a few years back, and I've experienced temporary relief of some symptoms from antibiotics last year, but then they came back with a vengeance.

I'll be seeing a gasteologist who has published papers on FMT (most here haven't even heard of it), and if that fails, I'd definitely like to DIY.