My wife was diagnosed Devic's disease, a rare disease with a grim prognosis. Almost every paper we could find on it had the name of a doctor that worked at the Mayo Clinic in Scottsdale. We lived in Arizona at the time so we went there and found that doctor. He corrected her diagnosis as MS, not Devic's. They both suck but Devic's is much worse. We paid out of pocket and getting the correct diagnosis was worth every penny.