Re:Ask HN: HNers with MS (multiple sclerosis, not Microsoft)...
by sjezewski on Saturday October 22, 2022 @02:54PM
(#33301028)
Sorry to hear you hurting. I’ve been there.
I was dx when I was 27, I’m 35 now. Though looking back I think I had it at least since puberty.
Right before the pandemic I was in a similar spot w my health. It’s rough. I would say I was roughly at EDSS 3-4, and I could feel myself slipping further. I won’t list my symptoms. Physical limitations were starting. Mental limitations where huge. And so much pain.
The pandemic was hard but brought me amazing gifts.
I’ve been off any medication (ocrevus) 3 years now. I feel 20 years younger. I’m on fire mentally physically emotionally spiritually sexually. I feel like the luckiest person alive. But I also think what worked for me will work for others.
It’s not all puppies and rainbows.
It takes work. It’s not for the feint of heart. It’s no guarantee.
I’m happy to share w folks. But I will not discuss it further on HN.
I was dx when I was 27, I’m 35 now. Though looking back I think I had it at least since puberty.
Right before the pandemic I was in a similar spot w my health. It’s rough. I would say I was roughly at EDSS 3-4, and I could feel myself slipping further. I won’t list my symptoms. Physical limitations were starting. Mental limitations where huge. And so much pain.
The pandemic was hard but brought me amazing gifts.
I’ve been off any medication (ocrevus) 3 years now. I feel 20 years younger. I’m on fire mentally physically emotionally spiritually sexually. I feel like the luckiest person alive. But I also think what worked for me will work for others.
It’s not all puppies and rainbows.
It takes work. It’s not for the feint of heart. It’s no guarantee.
I’m happy to share w folks. But I will not discuss it further on HN.
Feel free to reach out:
seanjezewski at protonmail dot com