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Re:Jailed baby gene scientist ‘should be made responsible’ f... by krisoft on Sunday March 20, 2022 @04:36AM (#30741102)
> We need to wake up from the childlike belief in the infallibility of scientism.

What I’m talking about is not scientism. In medical research and medical practice ethical questions come up all the time. Someone has to make a decision about these questions. I personally don’t have the time nor the resources to adjudicate all of these questions, therefore I have to trust the decision of some proxy on most questions. Trusting a group of people who care about ethics, and know about medicine is a good proxy (the ethics board).

This doesn’t mean that I believe them infaliable. If you believe that a particular ethics board in a particular case made a bad call let me know. Identify the case, tell me what the board decided and what you think should have been decided and why. I promise you that I will use all my faculties to learn more about the case and make a decision of my own if possible. Does that sound like scientism to you?

That being said this is a complete non-sequitur in the present case. The article is not about an ethics board who made a bad call. It is about a researcher who skipped the whole process and decided that he alone is enough to decide what is ethical and what is not. That is very suspect in itself. Furthermore people think that he made the wrong call, and what he did was not ethical.

Are you arguing that the ethics board system is so faulty that he was right to ignore it?

Are you arguing that he made the right call in thinking that this particular intervention is ethical?

Re:Jailed baby gene scientist ‘should be made responsible’ f... by quinnjh on Monday March 21, 2022 @04:30AM (#30751649)
Thanks for your take! I have more faith in the internal compass of people taking things seriously than i do in outsourcing ethics, but this doesnt mean that i conversely trust bad actors.

Surely not advocating for the latter, i think informed consent and voluntarism should be required. Personally not sure where i stand on some of the leading edges of genetic tech, but i also appreciate that there likely are arguments for development akin to atomic science. My hope is that we can continue to support and synthesize a broad spectrum of humanity rather than a few quantifiably valuable breeds. Im biased since i have a sibling with disability who i value more than the ethics boards that will triage him off of a ventilator :)