Re:Ask HN: How to raise funds for rare disease research?
by tupilaq on Tuesday February 08, 2022 @09:36AM
(#30258843)
Hey klankbrouwerij..
Just chiming in as my son too has an 18q deletion, albeit further towards the distal arm. Just to bring to your attention, if you were not already aware, of https://www.chromosome18eur.org and its parent organisation https://www.chromosome18.org.
Some great resources and there'll be folks who have experienced similar issues to you and yours.
Just chiming in as my son too has an 18q deletion, albeit further towards the distal arm. Just to bring to your attention, if you were not already aware, of https://www.chromosome18eur.org and its parent organisation https://www.chromosome18.org.
Some great resources and there'll be folks who have experienced similar issues to you and yours.