Ask HN: How to raise funds for rare disease research?

Re:Ask HN: How to raise funds for rare disease research? by fartcannon on Tuesday February 08, 2022 @01:23AM (#30255480)

No, not personally, I do have 2 on life long treatments. But I was being too hyperbolic and I don't doubt your story.

I'm just extrapolating incentives. Is there any incentive to cure (invoice once), when they can treat (life long invoices)? Certainly scorn is irrelevant as OPs comment suggests they're unwilling to work on rare diseases. And these companies are public. They have shareholders that expect them to constantly grow.

I don't believe it's a stretch to say, at the very least, the incentive is there.

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Re:Ask HN: How to raise funds for rare disease research? by bluGill on Tuesday February 08, 2022 @06:34AM (#30257255)

competion provides the incentive, a cure will put all your treatment competitors out of business as you get everything from everyone who doesn't like treatment.

You know many people who would have died of smallpox,measles, polio, and the like 100 years ago, you just have no idea who those people are.

[ Parent | on HN ]

Re:Ask HN: How to raise funds for rare disease research? by fartcannon on Tuesday February 08, 2022 @10:04AM (#30259201)

That is a reassuring perspective.

To be clear, I still think this conversation goes on in the background. Bill Gates famously convinced Oxford not to give the covid vaccine IP away thus preventing poorer countries from creating their own vaccines. The deaths from this act alone should be enough to convince you that money makes medicine murkier than you clearly want to believe.

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