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Re:Ask HN: How to raise funds for rare disease research? by MattGaiser on Monday February 07, 2022 @07:04PM (#30253326)
> ease of cohort accessibility was their number one takeaway

A good friend of mine founded a startup to try and solve this and I was about to join her full time when the pandemic unfortunately crushed it, especially as they couldn't find a real business model.

It would be quite interesting as a non-profit entity though.

Re:Ask HN: How to raise funds for rare disease research? by tsbischof on Monday February 07, 2022 @10:30PM (#30254599)
Out of curiosity, what business model were they trying? A few years back we were looking into virtual trial site companies (e.g. Science 37), and the pitch seemed to make sense at the time (focus on studies which require minimal site visits, use telemedicine for routine visits, coordinate with local labs and pharmacies as needed). That structure might be a good fit for rare patient cohorts.