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Re:Ask HN: How to raise funds for rare disease research? by halukakin on Monday February 07, 2022 @04:45PM (#30251732)
I hope one-day things would turn around. If the regulators asked pharmaceutical companies to study for these drugs on the side so much could change. Probably less than 1% of their R&D budget would be enough to move things.
Re:Ask HN: How to raise funds for rare disease research? by ImaCake on Monday February 07, 2022 @06:16PM (#30252865)
Absolutely. A lot of funding gets poured into dead end alzheimers research or similar that will never work. A fraction of that redirected to rare diseases that get zero funding will do wonders. It is a shame that academia and research are so burdened with graft and politics.