The Autism Phenome Project: Toward Identifying Meaningful Subgroups of Autism

Re:The Autism Phenome Project: Toward Identifying Meaningful... by SubiculumCode on Tuesday January 18, 2022 @03:44PM (#29985472)

There are a couple of motivations. A diagnosis of autism opens up support services that are often needed, one way or another. Therefore, I'd acknowledge there is probably incentives for the clinical diagnostic process to favor limiting false negatives. Nevertheless, when it comes to the gold standard of autism diagnosis (i.e. the ADOS), diagnostic sensitivity has increased over the years by zeroing in one the symptoms that autistics tend to share.

The implications of this increased sensitivity has been to 1) autism prevalence has gone up , and 2) the average "severity" of autism (ADOS CSS scores) has decreased. This has also led to conflicts within the autism advocacy community: e.g. diversity vs disorder.

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Re:The Autism Phenome Project: Toward Identifying Meaningful... by hbcondo714 on Tuesday January 18, 2022 @05:38PM (#29987115)

> A diagnosis of autism opens up support services that are often needed, one way or another.

In the LA area, there's a 6-month wait list to see an in-network child psychologist or neurologist that can give an autism diagnosis. Booked in November 2021, our appointment is in March 2022 and therapy classes are also wait listed. We found out-of-network providers but they are charging from $2,500 to $7,000 along with a 3-month waitlist.

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