Re:Scientists raise concerns over UK baby genome sequencing ...
by LinuxBender on Saturday December 04, 2021 @08:51AM
(#29440818)
Seems unfair and highly inappropriate to capture a babies genome when it is too young to consent to this. That data will be on record forever and leaked everywhere. What legal and technical protections does the baby have?
Suggestion: Wait until you have a hand-held DNA scanning device that can real-time scan the parents and the baby upon leaving the hospital. The device by law must not have writable storage and must dump all memory contents between uses. It must have a red light that says "No Match" and a green light that says "Match". If the red light comes on, you do a more extensive test that also has data retention protections in place. The parents must witness the entire chain of custody of the data from the more extensive test and witness the destruction of the data. Everyone involved signs a legally binding and witnessed data destruction form.
Suggestion: Wait until you have a hand-held DNA scanning device that can real-time scan the parents and the baby upon leaving the hospital. The device by law must not have writable storage and must dump all memory contents between uses. It must have a red light that says "No Match" and a green light that says "Match". If the red light comes on, you do a more extensive test that also has data retention protections in place. The parents must witness the entire chain of custody of the data from the more extensive test and witness the destruction of the data. Everyone involved signs a legally binding and witnessed data destruction form.