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Re:Why kidney failure led me to found an Health Tech Startup by jdavis703 on Thursday October 07, 2021 @11:34PM (#28795452)
Folks, I would strongly suggest getting a DNA test. There are mutations that are highly suggestive of susceptibility to kidney disease. Know your status and eat a kidney friendly diet and make sure you get frequent blood checks if you’re on drugs that may impact your kidneys (e.g. lithium, amphetamines, etc).
Re:Why kidney failure led me to found an Health Tech Startup by yellow_lead on Friday October 08, 2021 @12:39AM (#28795804)
Any DNA test providers you recommend? Preferably one that deletes your data / DNA after you're done with it.
Re:Why kidney failure led me to found an Health Tech Startup by _xri0 on Friday October 08, 2021 @01:17AM (#28795989)
Re:Why kidney failure led me to found an Health Tech Startup by nextaccountic on Friday October 08, 2021 @02:08AM (#28796211)
Do they store the dna in a database that law enforcement could, perhaps with a subpoena, have access to?

Here's a video how law enforcement can get a match on a dna database through any of your relatives that did a dna test there. https://www.youtube.com/watch?v=KT18KJouHWg

This kind of thing creates a chilling effect in which people avoid getting the medical help they need just to not contribute with a permanent genetic database. This kind of stuff is exactly why HIPAA exists.

Also: why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them?

Re:Why kidney failure led me to found an Health Tech Startup by jdavis703 on Friday October 08, 2021 @08:32AM (#28798461)
> why did they give you a summary, but gave the doctors a full report? Could you get the full report if you asked them?

If the tests aren’t FDA approved they probably don’t want to risk the regulatory ire that 23&Me encountered.

Re:Why kidney failure led me to found an Health Tech Startup by nextaccountic on Friday October 08, 2021 @03:36PM (#28803228)
But then why the doctors have access to it?
Re:Why kidney failure led me to found an Health Tech Startup by jdavis703 on Friday October 08, 2021 @08:35AM (#28798482)
I used 23&Me. They’re simple and cheap. And I’m not concerned about protection from legal searches here. We shed DNA everywhere we go. Law enforcement can go as far as picking up things like discarded cigarette butts a suspect tosses out their car to get a DNA match.
Re:Why kidney failure led me to found an Health Tech Startup by yellow_lead on Friday October 08, 2021 @08:38PM (#28805889)
I don't think that's a fair comparison. Your DNA in a database is much different than your DNA needing to be individually targeted to be sampled.
Re:Why kidney failure led me to found an Health Tech Startup by blitzar on Friday October 08, 2021 @03:36AM (#28796665)
> getting a DNA test

still a hard pass from me, I dont trust the 23 and me's of this world with my genetic code.

> get frequent blood checks

Do this either way, prevention is better than any cure, and monitoring is the first step to prevention. Elizabeth Holmes vision was not entriely stupid, when combined with batting her eyelashes, was what lured so many people in.

Re:Why kidney failure led me to found an Health Tech Startup by mtberatwork on Friday October 08, 2021 @11:19AM (#28800246)
No, you do NOT need to do frequent blood checks. Find yourself a doctor that you feel comfortable with, do yearly physicals and consult with them for anything in-between. Excessive testing will needlessly lead you into a spiral of health anxiety.
Re:Why kidney failure led me to found an Health Tech Startup by blitzar on Friday October 08, 2021 @08:01PM (#28805612)
Every 3-6 months tested and annual physical. Every physical I have ever had has included bloods - so it seems we agree on that frequency.

Done it for 10 years and 0 spirals of health anxiety, reduced medications and improved health. Annecdotal perhaps, but every person I know that undertakes a similar regime suffers far far less from health anxiety than those that dont. However, the health anxious tend to be sure they have cancer/diabetes/brain tumors based on their google searches but refuse to go to a doctor and get a checkup.