Re:Loss of myelin is one of the major factors of age-related...
by nikomen on Tuesday March 16, 2021 @08:50AM
(#26476013)
What type of immunosuppressant were you prescribed? I recently took prednisone for a little over a week and ended up with some nerve issues afterwards, but not as bad as typical small-fiber neuropathy. The symptoms still haven't resolved.
Re:Loss of myelin is one of the major factors of age-related...
by throwaway584568 on Tuesday March 16, 2021 @09:37AM
(#26476490)
I don't want to mention it's common name specifically, as this is rare enough that it could be linked to me personally.
It is actually an antibiotic (I'd somehow forgotten that - edited my original comment now!), but once that acts as a immunosuppressant, and it's less-common name is diaminodiphenyl sulfone.
Re:Loss of myelin is one of the major factors of age-related...
by Arete314159 on Tuesday March 16, 2021 @09:41PM
(#26485528)
I have CFS too, although from a different trigger. FWIW, I found the doctors at the Center for Complex Diseases to be amazing. They're 10x doctors, true scholars of the human body. They specialize in CFS.
I was left with small fiber neuropathy (nerve damage) in my arms and legs, and with CFS (Chronic Fatigue Syndrome) too. This means I'm in constant, unending pain (which takes a huge mental toll), that I'm tired all the time, and if I do any more than the gentlest of exercise, I fall asleep and am more tired and in even more pain for days or even weeks afterwards. It's fucking horrible.
This was about 6 years ago, and I'm pretty sure it's permanent. I haven't quite given up hope though - I have several Google Scholar alerts setup, and read several papers every week, in the hope of finding something that might reverse things even a bit.