This is where pseudonymous identities make a lot of sense.

In a world where organizations are radically transparent and individuals have radical privacy, before you join the disease support group or donate to the ACLU, you already know the organization's records about that transaction will be public information.

You can restrict your activities to organizations that do not keep personally identifiable information. Or you could join the support group with a pseudonymous identity or donate cryptocurrency to the ACLU.