Re:Time to Get Serious about Tick-Borne Diseases
by eigenloss on Tuesday August 20, 2019 @11:30AM
(#20748048)
https://news.ycombinator.com/item?id=20496393
I don't need to be told that tests are unreliable or that doctors can be as misinformed as any of us. I am encouraging anybody in this thread who is personally affected to seek medical advice, not the advice of random internet commenters.
Congratulations on beating RMSF.
Re:Time to Get Serious about Tick-Borne Diseases
by GiorgioG on Tuesday August 20, 2019 @11:53AM
(#20748365)
My point is people are desperate - and for some it's difficult to find (or pay) a LLMD. There are groups on FB (one of the only uses I have for FB) with thousands of members who give/get advice. No they aren't doctors, but I wouldn't discount their lack of certification - they have experience.
Unfortunately I have not yet beat it (or whatever other disease(s) the tick gifted me.) I'm still on 3-4 different antibiotics and feeling generally like crap. But it's 'only' been 3 months.
I spent 3 years (and thousands of dollars) trying to find out what was wrong with me until a neurologist tested me for Rocky Mountain Spotted Fever. It came back positive, he gave me 2 rounds of doxycycline and sent me on my way. Anyone with experience with prolonged tick-borne illnesses can tell you, that's not going to fix it. I went and got an appointment with a lyme-literate doctor (there's the typical 2-3 month wait for an appointment to see any of these doctors - if you're lucky.)