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Re:Cancer patients are being denied drugs, even with prescri... by DoreenMichele on Saturday August 03, 2019 @04:12PM (#20602413)
I have a relative who works at the CDC and has had cancer multiple times. Before life and money got in the way, we used to talk regularly on the phone. She bitched a lot about how 99 studies out of 100 were variations on a theme because that's where the funding was. There was very little that was genuinely new and innovative.

I don't know how to solve that.

I've been getting myself well (different condition) for years when that's not supposed to be possible. I'm quite open about that on the internet. I get attacked for talking about it and called crazy. I'm told "Produce studies backing up your claims" when there are none. No one is latching on to my story and going "What if she's on to something? Maybe we can do a study that will open up new treatment modalities for patients!"

I don't think it's as simple to solve this as you think it is. I don't know what needs to happen to break the herd mentality where humans don't seem to want to give any credibility to anything not already proven, which actively interferes with being able to prove anything new.

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