I'm ashamed when I see how much they are trying to charge. Glybera was a gene therapy that nobody used basically because it cost too much. This is a clear example that a company will never reduce the price of such a therapy. The actions of Mylan and the scumbag Shkreli also highlights the thought processes of pharma companies. As such, we shouldn't waste our time. The government should be allowed to negotiate pricing. I don't believe this will suppress research into rare conditions. There has in fact been an explosion of therapies for rare conditions in the last 10 years.