$200 retail whole genome sequencing now available

Re:$200 retail whole genome sequencing now available by shakna on Thursday November 22, 2018 @11:30PM (#18514365)

The privacy policy [0] suggests they're not selling personal information, and they make it easy for you to protect your information too. They do keep it for internal analyses and (maybe?) marketing purposes, but suggest that you can just ask them not to, and they won't.

> You may withdraw your consent to participate in Dante Labs Research at any time by contacting Dante Labs at the email address: [email protected]. Dante Labs will not include your Genetic Information or Self-Reported Information in studies that start more than 30 days after you withdraw (it may take up to 30 days to withdraw your information after you withdraw your consent). Any research involving your data that has already been performed or published prior to your withdrawal from Dante Labs Research will not be reversed, undone, or withdrawn.

I'm not quite sure what to think.

[0] https://us.dantelabs.com/pages/privacy-policy

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Re:$200 retail whole genome sequencing now available by onion2k on Friday November 23, 2018 @01:11AM (#18514696)

Also from their privacy policy;

Dante Labs will not sell, lease, or rent your individual-level information to any third party or to a third party for research purposes without your explicit consent.

So they will sell your data unless you specifically look for, find, and check the opt out. What happens to your data after that is out of Dante Labs control, so any other assurances they make are irrelevant.

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Re:$200 retail whole genome sequencing now available by tempestn on Friday November 23, 2018 @01:49AM (#18514824)

Are you just assuming there's a deceptive opt-out? They explicitly say they're GDPR compliant and will not share your info without explicit consent. It's a strong claim that they're actually lying and non-compliant, without any evidence.

My assumption, since this promo is for a few days only, is that it's like any sale; they're doing it to build their brand and attract new customers.

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Re:$200 retail whole genome sequencing now available by jammygit on Friday November 23, 2018 @01:47AM (#18514816)

without reading the policy, I'd bet money there is a clause saying one or more of

1 - in the event of a sale, your data may be among the assets transfered

2 - this policy is updated from time to time and comes into effect at the time of posting, and maybe we'll notify you ahead of time

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Re:$200 retail whole genome sequencing now available by occamrazor on Friday November 23, 2018 @04:53AM (#18515485)

According to GDPR, in case 1 they can transfer the data to the acquiring entity only if they are GDPR compliant too, and in case 2 all data sharing must be opt-in, not opt-out, so they can’t increase the scope of sharing without notice and affirmative consent.

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Re:$200 retail whole genome sequencing now available by thecatspaw on Friday November 23, 2018 @11:19AM (#18517291)

Doesnt that allow them to sell it for purposes _other than research purposes_?

Could they still sell it as marketing data?

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Re:$200 retail whole genome sequencing now available by a_imho on Friday November 23, 2018 @05:20AM (#18515592)

Rule of PPs: The longer the document the less protection it offers.

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Re:$200 retail whole genome sequencing now available by parliament32 on Friday November 23, 2018 @01:02PM (#18517949)

Doesn't "explicit consent" imply opt-in?

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Re:$200 retail whole genome sequencing now available by gruez on Friday November 23, 2018 @09:19AM (#18516516)

note this doesn't prevent law enforcement from seizing the information, or them auctioning off to the highest bidder when they're being liquidated.

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Re:$200 retail whole genome sequencing now available by shakna on Saturday November 24, 2018 @04:47AM (#18521282)

> or them auctioning off to the highest bidder when they're being liquidated.

The GDPR does, actually. The data can only be transferred to a GDPR-compliant company, and the user must agree to the transfer.

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