Save My Life: an update (Celiac biopsy negative)

Re:Save My Life: an update (Celiac biopsy negative) by savemylife on Friday July 16, 2010 @01:47PM (#1521860)

Thanks for the explanation. I hear you on the genetic testing. The whole process is frustrating. I do realize that I sound like that patient who wants to have "disease X" at any cost, and is looking for loopholes in the diagnostics.

But I want to know what's wrong with me, and what I can do to get better. This whole Celiac thing is really starting to feel like yet another dead end for me (Lyme Disease, Fibromyalgia, Sleep Apnea, Psychiatric, etc; just add it to the list.)

Still, I want to give it a good shot, and that seems to mean staying on the diet for a few months and see if I improve. If I feel better, who cares what the tests say? Though it would be nice to have confirmation, I just want to feel better.

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Re:Save My Life: an update (Celiac biopsy negative) by carbocation on Friday July 16, 2010 @02:13PM (#1521952)

Yes, as I suggested in another post in this thread, there is absolutely no risk in doing the no-gluten diet (except maybe higher cost of food), so there is basically no downside. Your expected benefit is greater than or equal to zero, so keep it up!

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