Re:Open Sourcing My Personal Medical Record
by kwhitefoot on Thursday May 04, 2017 @01:35PM
(#14266888)
Even without the patient's name attached it is easy to identify people because of the necessary metadata in the record. If you expect to get useful information about, for instance lung disease the record will have to contain information about exposure to likely causes, age, occupation, region of the country (possibly town), sex. It will also contain marital status, whether one has children, drinking and smoking habits, weight, ethnicity.
This is pretty close to unique, just like a browser finger print.
See for instance: http://randomwalker.info/publications/no-silver-bullet-de-id...
Re:Open Sourcing My Personal Medical Record
by herman5 on Thursday May 04, 2017 @01:09PM
(#14266619)
Anonymize then let the flood gates open.
Re:Open Sourcing My Personal Medical Record
by zzalpha on Thursday May 04, 2017 @01:15PM
(#14266686)
De-anonymizing medical records strikes me as a fairly easy problem to solve... the information is literally one large biometric database.
Re:Open Sourcing My Personal Medical Record
by blaurenceclark on Thursday May 04, 2017 @01:15PM
(#14266694)
There are actually government mandated methods for deidentifcation
https://www.hhs.gov/hipaa/for-professionals/privacy/special-...
Re:Open Sourcing My Personal Medical Record
by jldugger on Thursday May 04, 2017 @02:32PM
(#14267431)
> government mandated methods
Is that supposed to imply they work?
Re:Open Sourcing My Personal Medical Record
by dragonwriter on Thursday May 04, 2017 @02:44PM
(#14267539)
Actually, if you read that, they aren't government mandated methods (in the technical sense) there's an option of either using a government-specified safe harbor method or getting an "expert determination" that the data is deidentified.
Re:Open Sourcing My Personal Medical Record
by blaurenceclark on Thursday May 04, 2017 @03:27PM
(#14267902)
I should have said "there is a government mandated method, but that's not the only way" It's more of a starting point than anything else. Also if you get HIPAA audited you either have to follow the government way (easiest for broke startups) or go the expert way but that is a bit more costly to prove out.
I whole-heartedly support the general idea, and making a centralised database of things like this would be great. Such a database would probably make it easier to anonymise the data as well.