I think the important distinction here is that you're not just saying "Hey, Internet, what's wrong with me?" and leaving it at that. You've been under the care of (many?) physicians and continue to be. So you're not taking the Internet's word for it and rushing off to try some hair-brained "cure" (Trying a gluten free diet, even if that's not the issue, certainly won't harm you. I'm sure if the Internet had said "drink a bucket of Draino" you'd have drawn a line). You're just looking for information and ideas beyond what you and the doctor have already discussed/tested for. You're just exploring other possibilities and then following up on that with your doctor. I'm glad to see you're finally starting to get some answers and I hope you're able to, at least, get to the bottom of all of these problems.

Keep in mind, too, though, you may not have one definitive diagnosis. You could have _______ and also ________, or ________ caused by ________, which then makes ________ worse. The body is a complicated thing.