My employer used a service called NoMoreClipBoard. They enrolled everyone enrolled in a health plan, not just those who requested it.
When the inevitable data breach happened, everyone was affected not just those who had specifically enrolled for this service.
I don't ever want my medical records in any internet-facing system. I realize that's a fantasy but I'd never voluntarily help make that happen.
FTA: We use another YC company called Aptible. They’re experts in securing protected health information, and we follow best practices to make sure our servers are safe.
It's not just the security of the servers. Many data breaches are the result of careless handling of data (USB flash drives, laptops, email attachments) and social engineering attacks.
This! I would pay even a premium for non-digitalization.
But, at PatientBank, security and privacy of our patients are our top priorities. So, we go above and beyond what HIPAA recommends in terms of security best practices. You can read more about that here: https://www.patientbank.us/legal/hipaa
The protection needs to be automatic. Training people is a "good intentions" solution, and will always result in failures. It should be mechanically impossible for the data to escape in a way you do not approve of.
And it's not like it expires. You can change your credit card number, you can change all your leaked passwords, but you can't change your past. Once it's breached it's out there until the end of tech.
That said, I would definitely trust a private entity with specialized knowledge over the government or individual doctors offices, so I wish you the best of luck.
For example, I just had my medical records sent from an old doctor's office, and the only thing they required was a fax with my signature on it and an address to send the records to. Could have been sent by anybody to anywhere, and there were no checks whatsoever.