One of the most important questions you can ask your doctor before getting treatment (whether that treatment is surgery or medication) is "What happens if we don't do anything? If we just watch and wait?"
Here's a short film about involving older people, and their carers, in their healthcare when they enter a carehome setting. This work focusses on a medication review involving a doctor, a pharmacist, the patient, and their carers. The reviews save money, increase quality of life, and reduce risk of death by suicide and accidental death.
But it is seriously wrong to assume the patient will continue to act akin to a corporate employee bloodlessly toiling on a project at work. It is far more likely that the patient will at some point begin to act like a person with discomfort, with all the accompanying bewilderment, skepticism, confusion, hypersensitivity, etc. This reality needs to be honored, not waved away.
Again, I do advocate for educated and engaged patients, but I totally reject the idea that systematically these patients are to be depended upon for engagement in their own care to the degree that any medical errors can reasonably be precluded by such engagement. Not only does it fly in the face of psychological realities of patients, it appears to me to be an ugly slippery slope toward the direction of general victim-blaming and "externalization" that the corporate ethos is so well known for.
I upvoted your comment. There are a couple of things you ought to consider when reading the replies.
1.) People want to believe that they'll know when they're "off their game". That doesn't make them brutalist thugs. There's plenty of cognitive bias to go around.
2.) Saying it is "out to lunch" to manage one's own care is lacking in the context department. It seems to me that there are plenty of situations where the patient is in a strong position to "manage" their own care. Is that always the case? Certainly not, but it's not patently false. It depends.
There's been talk in the comments on this story about modern aviation, copilots. The relationship between a patient and provider ought to be adjusted to find the best outcome. Finding the right mix is difficult, but I think we can do better than "The patient is always right" or "The provider has absolute control."
I hypothesize that fewer avoidable mistakes will be made, due to care-providers exercising more caution while under the strict scrutiny of your trustee. If they know anything at all about medicine, the outcome is likely to be even better.
I don't doubt your intent is good, and I like to promote literacy in care as well, but I really really think the notion that supervising one's own care is a good idea is completely out to lunch. The pain, discomfort, emotional trauma, precarity -- these very real things tend to put even the best manager off one's game.