Re:Google AI has access to huge haul of NHS patient data
by adamsea on Monday May 02, 2016 @04:25PM
(#11615256)
It's an interesting question for sure. There are issues of consent which, especially for poor or marginalized people, should be addressed. Like Henrietta Lacks...
I think in this case and others like it the family, at minimum, has a right to know.
"...it was not until 1973, when a scientist called to ask for blood samples to study the genes her children had inherited from her, that Ms. Lacks’s family learned that their mother’s cells were, in effect, scattered across the planet. Some members of the family tried to find more information. Some wanted a portion of the profits that companies were earning from research on HeLa cells. They were largely ignored for years."
I think in this case and others like it the family, at minimum, has a right to know. "...it was not until 1973, when a scientist called to ask for blood samples to study the genes her children had inherited from her, that Ms. Lacks’s family learned that their mother’s cells were, in effect, scattered across the planet. Some members of the family tried to find more information. Some wanted a portion of the profits that companies were earning from research on HeLa cells. They were largely ignored for years."
http://www.nytimes.com/2013/08/08/science/after-decades-of-r...