Re:What Alzheimer’s Feels Like from the Inside
by DanBC on Tuesday December 29, 2015 @09:46AM
(#10806858)
This is a great, but very short, account of what some people with dementia illnesses go through.
There are some things that didn't get mentioned: stuff like how to you talk to your family about DNR and other advanced directives? When do you stop driving? When do you hand over control of your money to someone else? A lot of advanced directives will say something like "no heroic measures". Doctors hate that, because it doesn't give them nearly enough information to make a decision about care. Giving more detail is important. They may not be able to obey your instructions, but they need to consider them and have a good reason for ignoring them.
It's a really good idea to have those conversations now and get some kind of plan in place because at the time it's going to be tough enough for everyone anyway.
There are some things that didn't get mentioned: stuff like how to you talk to your family about DNR and other advanced directives? When do you stop driving? When do you hand over control of your money to someone else? A lot of advanced directives will say something like "no heroic measures". Doctors hate that, because it doesn't give them nearly enough information to make a decision about care. Giving more detail is important. They may not be able to obey your instructions, but they need to consider them and have a good reason for ignoring them.
It's a really good idea to have those conversations now and get some kind of plan in place because at the time it's going to be tough enough for everyone anyway.
Here's a description of some advice from an English perspective: http://www.gloucestershireccg.nhs.uk/gloucestershires-dement...