throwythingy2

My story is not a million miles away from this. I was fobbed off - despite being hospitalised for a year in my teens - as being 'psychosomatic'.

Quite why, in this day and age, doctors can't just fess up straight and say 'I don't know' is baffling.

Wind forwards to my mid twenties, and guess what, I am genetically diagnosed as having a recognised, hereditary muscular problem. Suddenly, everything slots in to place, and it turns out I'm not actually a lazy bugger at all...

To the OP: I cannot recommend pain management programmes enough -- the NHS run them, and I learnt a huge amount about managing both chronic pain and the associated medication. They also do sleep management programmes. The Occupational Therapists are also really helpful, they run so-called 'rehabilitation programmes', which are basically all about working out how you can maximise your capabilities within your limits. Best of luck.