brooke2k
- If insurance refuses to cover something, check your insurance site for something called an explanation of benefits for that charge, which should give a clear reason why it was denied. Sometimes though (way more often than it should be) the reason is completely wrong, or vague, or nonexistent, or is just hard to understand, in which case call the insurance and harass them daily until they either pay for it or give you a sane explanation.
- If you go through all of that and they still won't pay, get in contact with whoever made the charge (hospital, lab, doctor, etc), and tell them that your insurance refused to cover it, and that you need to negotiate the price down. This works sometimes. Even when it doesn't work, they can usually get you on some sort of payment plan so that your checking account doesn't go immediately dry.
- In general, get used to spending all your time on the phone calling insurance and doctors trying to get people to take you seriously. This is problematic obviously because you're SICK so generally you're not exactly in a state where you can do that. If you have any friends or family, see if you can enlist them to call people for you. Also, if you can get access to a social worker, sometimes they will be able to help you with calling insurance places and that kind of stuff. If you're inpatient, just ask your nurse for a social worker - at all the hospitals I was in, they had social workers on call for stuff like that.
- Write down on your phone somewhere a bullet list of all of your symptoms, treatments, diagnosis (or attempted diagnoses), etc. You will constantly (and I mean CONSTANTLY) have doctors entering your room who have not even GLANCED at your chart, who have absolutely no idea what's going on, and who will seemingly make all of their decisions based on your answer to the question "so what's going on". So make sure you have a good answer to that, which makes it clear to them that you have a serious problem that is worth taking seriously.
- Adding to that, push each new doctor that comes in for an actual PLAN. Your doctors likely WILL NOT communicate and plan with each other -- treat yourself as the project manager. You are the go-between for everybody. If the neurologist says something, then next time you see the oncologist, make sure they know that the neurologist said that. It is unfortunately your responsibility to lead the team of doctors that cares for you, at least in my experience at a few different hospitals.
- If you have pain, don't be afraid to ask for pain meds, because unless you ask for them, they won't be given to you. Even if you're writhing and moaning in pain, you will either be ignored or given extra-strength tylenol. You have to constantly advocate for yourself and be persistent about getting actual pain medication. Even when they do give you opiates, they will try to give you the smallest possible oral dose unless you specifically tell them "I need this much of this kind, and I need it IV, otherwise it doesn't help enough".
- This includes learning how to use the 0-10 pain scale. If you're like me, your instinct will be to always undershoot your pain number, because yes this is excruciating but I'm sure people who've had full body chemical burns feel far worse than this, so maybe in the grand scheme of things what I'm feeling is just a 5 -- don't do that. The 0-10 pain scale, in practice, is actually a metric of "how much do I need pain medication right now". In my experience, anything from 0-5, even if it really hurts, will not get you real pain medication. 6-7 is like "wow this hurts, it would be nice to get something for the pain", and 8+ is "this is excruciating, I need pain medication right now".
Anyways, good article and I agree with everything there, especially the part about going to a major cancer center instead of your local hospital whenever possible. Just wanted to add some more thoughts from my own experience.
but clearly I'm missing something
But if you want to have enough influence to effectively advocate for changing a rule as impactful as the site-wide notability guidelines, then you'd likely want to spend quite a while volunteering, integrating yourself into the community, and learning a lot about how and why the site rules are what they are.
I think that's a good thing. It means the people who have the influence to make huge decisions like that are deeply familiar with the website and the community, and therefore deeply familiar with the consequences of those decisions.
So I just find it frustrating when people who don't participate in the community whatsoever write inflammatory diatribes on why they think the editing guidelines should be changed because their favorite programming language got marked for deletion.
And it's even more frustrating how, when their handful of drive-by tweets fail to immediately enact sweeping change, they and their followers then start a huge flame war, accusing Wikipedia mods of being "cultural marxists" and "shills for the mainstream media" and etc.
Anyways, my point is -- if you want to change things, try participating in the community rather than shouting slurs at it from the outside.
> Getting the initial code written is not the big deal. For curl, maintaining and polishing the landed code through decades is the real task.
This is the real sticking point for me with vibecoding. In the short term, vibecoding everything might get you something that works. But I have a hard time accepting that in the long-term, maintaining a large and complex codebase is feasible when you haven't actually developed a deep understanding of it.
But maybe that's my bias as someone who considers their job description to be basically "develop a deep understanding of and maintain this large codebase".
The build and dependency systems are an abysmal esoteric, poorly documented mix between csproj files, sln files, random scattered json files, etc.
The standard library in my experience sucks and has all sorts of issues, especially around Uris, DateTimes, etc.
And the ecosystem itself has such a low quality bar, ironically _especially_ with anything made by microsoft. For every nuget package that's well-designed, well-documented, and easy-to-use, there's five which have bugs and undocumented exceptions and poorly-designed APIs.
so in response I changed my windowing strategy to having a set of windows floating around at exactly the size I want them, and then the advantage of the enormous screen is just how many windows I can have open at once
that being said, I use KDE not MacOS, and 90% of Mac users I'd guess are on laptops, so using this strategy sounds completely insane to me. On laptops I still default to fullscreening or "half-screening" most apps.
However if your interests lie in indie games or games that require a keyboard and mouse interface (precision shooters, grand strategy games, RTS games, etc) then having a PC that can play games is completely necessary. (I say this as someone who runs linux btw, not a windows defender).
but users don't have a 1:1 mapping to the people that log into them. linux users that aren't used by any particular person, but by a particular _service_ are common. so are linux users that could be logged into by any number of people, and which have no specific single owner.
We are ruled by a two-party state. Nobody else has any power or any chance at power. How is that really much better than a one-party state?
Actually, these two parties are so fundamentally ANTI-democracy that they are currently having a very public battle of "who can gerrymander the most" across multiple states.
Our "elections" are barely more useful than the "elections" in one-party states like North Korea and China. We have an entire, completely legal industry based around corporate interests telling politicians what to do (it's called "lobbying"). Our campaign finance laws allow corporations to donate infinite amounts of money to politician's campaigns through SuperPACs. People are given two choices to vote for, and those choices are based on who licks corporation boots the best, and who follows the party line the best. Because we're definitely a Democracy.
There are no laws against bribing supreme court justices, and in fact there is compelling evidence that multiple supreme court justices have regularly taken bribes - and nothing is done about this. And yet we're a good, democratic country, right? And other countries are evil and corrupt.
The current president is stretching executive power as far as it possibly can go. He has a secret police of thugs abducting people around the country. Many of them - completely innocent people - have been sent to a brutal concentration camp in El Salvador. But I suppose a gay hairdresser with a green card deserves that, right? Because we're a democracy, not like those other evil countries.
He's also threatining to invade Greenland, and has already kidnapped the president of Venezuela - but that's ok, because we're Good. Other countries who invade people are Bad though.
And now that same president is trying to nationalize elections, clearly to make them even less fair than they already are, and nobody's stopping him. How is that democratic exactly?
Sorry for the long rant, but it just majorly pisses me off when I read something like this that constantly refers to the US as a good democracy and other countries as evil autocracies.
We are not that much better than them. We suck. It's bad for us to use mass surveillance on their citizens, just like it's bad to use mass surveillance on our citizens.
And yet we will do it anyways, just like China will do it anyways, because we are ultimately not that different.
In the gaming sphere it's so universally used that all the friends you've ever made while gaming are on it, as well as all your chat history, and the entire history of whatever server you met them on. And if you want to make new friends, say to play a particular game, it's incredibly easy to find the official game server and start talking to people and forming lobbies with them.
My main friend group in particular has a server that we've had running since we were teenagers (all in our mid-20s now) which is a central place for all of the conversations we've ever had, all of the pictures we've ever sent each other, all the videos we've ever shared, and so on. That's something I search back through frequently looking for stuff we talked about years ago.
So I'm not saying it's impossible to move, but understand that it would require:
- Intentionally separating from the entire gaming sphere, making it so, so much harder to make new friends or talk to people. - Getting every single one of your friends that you play games with to agree to downloading and signing up for this new service (in my case that would be approx. a dozen people) - Accepting that this huge repository of history will be wiped out when moving to the new service (I suppose you could always log back in and scroll through it, but it's at least _harder_ to access, and is separated from all your new history)
On top of this, every time I've looked for capable alternatives to Discord I've come up empty-handed. Nothing else, as far as I can tell supports free servers, the ability to be in multiple servers, text chat divided into separate channels, optional threaded communication, voice chat joinable at any time with customizable audio setup (voice gate, push-to-talk, etc), game streaming from the voice chat at any time, and some "friend" system so that DMs and private calls can be made with each other. And even if I found one, then again I can't express enough that in the gaming sphere effectively _zero_ people use it or even know what it is.
Anyways, I'm not saying that nothing could make me abandon Discord, I'm just saying that doing so is a tremendous effort, and the result at the end will be a significantly worse online social life. So not a mild inconvienence.
I spent ages trying to get Emacs to work well with C# stuff, because I can't stand using IDEs that don't have some sort of emacs-style keybinding support, but eventually I bit the bullet and started using Rider and honestly it's been amazing and worked seamlessly with everything I've thrown at it (especially Godot). Highly recommended.
But the culture around Rust is such that libraries on average tend to be of much higher quality - more correct, better APIs, more assumptions encoded into the type system rather than punted to runtime, etc.
> With the new LibGodot, you can now embed the engine directly into your own applications. Instead of running Godot as a separate executable, you can control startup, manage the engine loop, and integrate it seamlessly into custom workflows.
it might seem like a small thing but the IoC setup of Godot makes it really annoying to build certain game infrastructure (specifically in my case, automated testing) because everything is beholden to the main engine loop, to the node tree getting mounted, etc. being able to take control of that and have the engine run under your own terms is super cool.
that being said, I'll probably wait for a couple versions before trying it out on my game since I'm sure it's not exactly battle-tested yet